On hearing how rare the disease was:
“The typical questions come right? Why us? Why him? But we do attend church so that was what we clung to, helped us get through and process it. Our family, friends, church rallied around us.’’
The cost after the diagnosis:
“(They told us) it’s going to cost you S$20,000 a month. You are new parents with a six-month old baby, who are already trying our level best … and now you tell us this medication is going to cost (so much). We were floored.”
On how 8-year-old Christopher copes:
“He tried to search for himself on Google and found the article (on our story) and his conclusion was that he was a really special boy
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